Friday, September 19, 2014

Halloween sneak peak

Michaelangelo wants to give you a sneak peak at some Halloween costume ideas
 We have the wheelchair and the walker to do.

A sneak peak at Katheryn's costume as well.

6 weeks to go!

Friday, September 12, 2014


For real this time!

We have the solution!
Good nites Tru-fit underwear (the link seems to be broken, all I get is a stream of letters), but you can google it.

It has been 6 weeks since the MACE and we haven't had one single (knock on wood) poop accident! Even with skipping a day, and once two days, and no accidents.
We are still having some leaking, but having a whole diaper for a bit of leaking is over kill. So then I'm trying to figure out what to do. We've tried the pads over the last year, and they slip around or bunch and leak.

I've seen the Tru-fit underwear before and the pads. The underwear is $27 for 2 pairs of underwear. And I thought that was waaay overpriced, but I bought the pads to just put in regular underwear.
The thing with the true-fit is that there is no sticky backing, so of course the pad didn't stick to anything, and actually fell out.

So when we went on vacation at the end of August I bit the bullet and paid the $40ish for 2 pairs of underwear and a pack of (18) pads. After just a couple of days I couldn't believe how well they worked. They are FANTASTIC!

They are regular underwear, that hold a pad in place, to catch all of the pee.
 We have only had one time of leaking out of the underwear, and that was when I put on Nick's underwear I didn't make sure his penis was actually on the pad. It wasn't, so of course when he leaked it wasn't onto the pad.

We've been using the underwear every single day for 3 weeks and that is what I am sending Nick to school wearing. Real underwear! To school!

The difference between the underwear is an inner liner that is made to fit continence pads, while the outside is regular underwear. I've now bought 6 pairs of underwear so we have enough to get through the week.

I've been looking to see if anyone can sew these liners that I can just clip into regular underwear, but I can't find anybody. My sister wasn't able to, she was pushing cloth diapers that do the same thing, but I really don't want Nick to carry around peed-in liners when he is in school.

The outside looks just like regular underwear

Nick isn't as excited as I am. He says he likes wearing the diaper, which he still wears overnight. But once we get the underwear on him he is good.
We use the tru-fit pads at school, which are bigger, but more expensive. And at home we use regular adult incontinence pads, which still fit but are a bit smaller. They have a sticky back, but I don't stick them on.

*I wondered about latex, the sites says that it is NOT made with natural rubber latex!

This is such a great creation. I'm so glad we are able to use them!

Monday, September 8, 2014

School Time!

Katheryn is all ready for real school now! Grade one!
She started last week (and still enjoys going), which is always a good sign.

She gets to sit at a real desk (surrounded by boys), and her favorite parts of the day are recess, gym class,  and the library. She has all of her friends in the class with her and she likes her teacher.

I've been trying to ask how school is going without asking the same questions every day.
What was your favorite thing you did today?
Did you have fun?
What was your favorite thing you learned today?
Who did you play with?

Nick's first day of school was today.
His second (and final) year at Campbell's Children's School for senior Kindergarten

Nick had a great day at school. Some of his friends were still there (including a little girl he talked about all year) and some new friends, including Alejandra that we've known for a couple of years (and who also has spina bifida).

Nick wanted to have a Ninja Turtle picture. So this is Nick with his nun-chucks

Nick is just jumping right back into school-mode. He is in the same class, same teachers, EA's he knows, same bus.

Back to school has been great so far!

Sunday, August 31, 2014

Last of Summer Vacation

We spent our last week of summer vacation up North.
We spent 4 days at my parents cottage on Kushog Lake, then went to Kyle's mom's cottage on Orr lake for the last 3 days.

It was fun and relaxing and hopefully not too boring for the kids.

Nick loved the lake and the swimming. It is a deep lake (and cool)
All he wanted to do was swim, swim, swim.

Most of the days we swam together, but right away he wanted to swim from dock to dock with me.
He said to me "Mommy, I can't walk by myself, but I can swim by myself"
So that is what he did. Swim, swim, swim. When he would get tired he would swim holding onto my hips (we tried holding onto my shoulders but he is more likely to push my underwater)

Katheryn was excited to be swimming too.
Because the lake it deep she had to have her floaties on at all times.
(And even if it seems that Nick is off swimming by himself, I was close all all times)

We also did some rock-collecting.
When I was little we used to walk along the road a collect Monarch caterpillars. But with the climate change we don't see very many Monarch caterpillars anymore. They are starting to come back and I had hoped we would find some, but we didn't. 
But we were able to find some nice round rocks

I painted the rocks for Nick. Ninja turtles of course!
Nick didn't really understand (or want to understand) that he couldn't play with them. Everything is ninja turtles for him.

We also played some soccer.
Nick really liked that he could play with Katheryn. He can kick the ball and it will actually move!
Katheryn played goaltender for a while.

The dock is one of those no-no places. Yes Nick's walker could go down it. Would it make it down it without going off the side.
So there is no going  out on the dock without an adult (and/or floaties)

But we can take a minute for a nice photo

Katheryn and Nick were all ready to go out onto the dock now

The water was cool some of the days (70F). We went swimming a couple of the days, but this was as close as we got.

We also took Nick's new canes out and made him walk with them. He wasn't happy, but this was how he could move around.

Katheryn loved the swing set and trying new tricks.
She is even jumping off the swing (while swinging) as well

After a couple of days we moved cottages and got to meet up with Daddy as well.

We spent even more time in the water and with family.
Hayden, the kids 3rd cousin was at the new-cottage and they played together all the time when we were there.

After a relaxing (or exhausting) week away it was time to go back home and get ready for school!

Our summer was super busy, it seems like we were always on the move and doing stuff. No one got bored and once we got the all-clear that Nick was healed we were off doing more stuff!

Thursday, August 28, 2014

Christmas in August

Merry Christmas in July!

During our last week of summer vacation we went up to the cottage and visited Santa's Village in Bracebridge. It was all kid friendly and completely accessible. My parents came with us.

There was some carnival games, winner every time

A jumping castle (I let Nick go in only when there weren't any other kids in.. it got crazy with lots of kids in it)
Katheryn loved doing flips

They had an ornament ferris wheel, so we all went up on that.
I wasn't sure how the kids would be with the height, but they were good!

There was an area to take some Nick Christmas pictures on a sleigh with presents around.
The kids weren't that interested in smiling, so we did some funny faces instead

We got to meet Santa Claus and tell him when they wanted for Christmas. They got elf hats at the same time! Nick was very excited to meet St Nick ("just like me!"), but once we got up, Katheryn didn't want to go near him and hid behind me.
They were very interested to meet Mrs Claus too!

Katheryn's favorite part was getting her face painted. She is Hello Kitty, and Nick is ... of course... Michaelangelo

We got to play some mini-putt. Nick really wanted to do this.
The course was not accessible at all, but we made it work. We tried all kinds of different ways to help Nick hit the ball. The wheelchair was too bulky, the canes were too flimsy. What worked in the end was me standing behind him, holding his hips so he could move himself around and had the space to swing the golf club.
We did all 9 holes

We also rode a train through the whole park. I think we did it 5 or 6 times. This was my mom's favorite part. We rode in the front, in the back, in the middle. The guy even let both kids sit in the drivers seat (he only let Nick do it first, and then I think realized that it wasn't fair to Katheryn and let her do it.)

While Katheryn was off doing something, Nick and I snuck away and did some gingerbread men.

Finally at the end of the day the kids wanted to go on some rides. This was Nick's favorite thing to do, the plane when up and down and around the track.

It was a fantastic day!